About

My name is Ceci. I’m 38. I was diagnosed with ms in 2001. My first symptoms were in 1990, blurry vision. I have no intention of dragging anyone through the trials and tribulations of my disease. My story is like so many others. I have tried, what feels like, everything. Not much has helped. I have amassed more patience and coping tools than I ever thought possible. I went from one crutch, to two, to the wheel chair. Not the life I thought I signed up for, but despite it all, I remain pretty happy. I think I just came in that way. I am the eternal “glass half full…”.

In November I came across the ultimate game changer, CCSVI and Dr. Zamboni. It appears ms just might be a plumbing problem and not an auto immune disease after all.

I scoured the Internet, lost sleep, cried enough to drowned a baby elephant and ultimately came up with some answers. Those answers change constantly, as the awareness and controversy over CCSVI is a live beast and in a constant state of flux.

In this blog I offer the commitment to give an accurate description of my experience with CCSVI. I will not behave as a Pep Rally leader or mislead anyone, i’ll just tell it how it is. If you are seeking a forum to discuss CCSVI I suggest thisisms.com. This forum has been an invaluable resource to me. Every question you may have regarding CCSVI has either already been answered or you can get an answer.

I am excited. I am cautiously optimistic. I am terrified. I am determined. I am a train wreck. I guess I’m a little bit of everything. The upshot – I am going in with guns blazing and I’m not looking back!

Until next time
-c

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4 thoughts on “About

  1. You go, Girl! We are all supporting you through whatever you chose and we see you coming through this procedure whole and sound as we are all meant to be. Prayers will go from St Pete, FL to Unity Village in MO to around the world for you. Feel all the energy through every cell of your body every moment of every day, healing, healing, healing. Your FL R&R at Stormin’ Norman’s Pool and Patio is always awaiting you!
    With lots of love and endless hugs, “H”

  2. …the eternal “glass half full…”… I love that! Thank you for sharing all of this with us last night at Ignite Boulder. Your courage and candor were very inspiring!

  3. Ceci,
    Thanks so much for sharing your amazing story. I can’t thank you enough for this blog and your Ignite Boulder talk. My mother in law has MS and has been struggling with it for over 25 years. My heart breaks for here everyday because she has lost hope. Maybe this will be the small piece of light that will keep her going.

    God bless you.

    Jaimie

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