My name is Ceci. I’m 38. I was diagnosed with ms in 2001. My first symptoms were in 1990, blurry vision. I have no intention of dragging anyone through the trials and tribulations of my disease. My story is like so many others. I have tried, what feels like, everything. Not much has helped. I have amassed more patience and coping tools than I ever thought possible. I went from one crutch, to two, to the wheel chair. Not the life I thought I signed up for, but despite it all, I remain pretty happy. I think I just came in that way. I am the eternal “glass half full…”.
In November I came across the ultimate game changer, CCSVI and Dr. Zamboni. It appears ms just might be a plumbing problem and not an auto immune disease after all.
I scoured the Internet, lost sleep, cried enough to drowned a baby elephant and ultimately came up with some answers. Those answers change constantly, as the awareness and controversy over CCSVI is a live beast and in a constant state of flux.
In this blog I offer the commitment to give an accurate description of my experience with CCSVI. I will not behave as a Pep Rally leader or mislead anyone, i’ll just tell it how it is. If you are seeking a forum to discuss CCSVI I suggest thisisms.com. This forum has been an invaluable resource to me. Every question you may have regarding CCSVI has either already been answered or you can get an answer.
I am excited. I am cautiously optimistic. I am terrified. I am determined. I am a train wreck. I guess I’m a little bit of everything. The upshot – I am going in with guns blazing and I’m not looking back!
Until next time